Dorothy
Edinburgh, Scotland
Kirsten and Kaelen, Megan and Robbie, Tom – A family of 5 with Axenfeld-Rieger Syndrome
In 1986, I had twin daughters Kirsten and Kaelen. At just 9 days old, Kaelen died from a complex heart condition. She was not tested for ARS at the time, but our geneticist thinks after reading her post-mortem report, it’s highly probable her heart condition was due to the Foxc1 gene mutation. Kirsten was diagnosed …
