The Axenfeld-Rieger Foundation is on a mission to advance research and support patients with Axenfeld-Rieger Syndrome. We need your help to grow and improve!
Your assistance – no matter how big or small – will help us to provide better resources for families, secure more funding for important research, and more!
Not only is volunteering a fun way to make a real difference to our community, but it will also help you to develop new and existing skills.
You can volunteer from anywhere in the world – everything is done online.
Think about your skills, interests, and abilities. How can they help us to be more effective in our mission?
Here is a list of activities we currently we need support with:
- Evaluate the website and make recommendations for improvement
- Create informational resources for newly diagnosed patients, and parents, new to Axenfeld-Rieger Syndrome
- Help build our library of articles about Axenfeld-Rieger Syndrome
- Develop materials to support individuals in fundraising activities
- Collate details of major ophthalmology departments
- Collate details of visual impairment societies
- Produce profiles of people with Axenfeld-Rieger Syndrome so others can read their stories
- Investigate grant funding and make applications
- Collate a list of doctors experienced with Axenfeld-Rieger Syndrome
- Develop materials to be used to seek sponsorship from companies
- Investigate and produce guidance on ways to set up fundraising feats such as participation in marathons and skydives
- Write press releases and stories, and articles for the websites
- Produce email newsletter content
- Create graphics and marketing materials
- Develop social media updates
- Investigate and prepare materials for our entry into the next Million Dollar Bike Ride.
Interested in getting involved? Have an idea to share with us? Get in touch
