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Axenfeld-Rieger Foundation

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      • What is Axenfeld-Rieger Syndrome?
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    • About Axenfeld-Rieger Syndrome
      • What is Axenfeld-Rieger Syndrome?
      • What causes Axenfeld-Rieger Syndrome?
      • How is Axenfeld-Rieger Syndrome diagnosed?
      • How is Axenfeld-Rieger Syndrome treated?
    • About Us
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      • Our Community
      • Volunteering Opportunities
  • Resources
    • Patient Resources
      • Find a Specialist
      • Genetic Testing
      • About Glaucoma
    • Scientific Resources
      • Journal Articles
    • Clinician Resources
  • News
  • Contact Us

We are a patient advocacy group dedicated to improving the lives of people affected by Axenfeld-Rieger Syndrome (ARS).

Our focus is on advancing scientific research into the condition and developing a cure for glaucoma caused by Axenfeld-Rieger Syndrome.

We do this by raising awareness, fundraising, and consolidating people, knowledge, and ideas.
Learn More about Axenfeld-Rieger Syndrome

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DNA structure

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Our Community

Come and meet some of the members of our community and learn about their stories!

Kayla

Missouri, USA

KaylaRead More

Avayah

New Hampshire, USA

AvayahRead More

Alexander has Axenfeld-Rieger Syndrome

Alexander

Texas, USA

AlexanderRead More

Five year old girl has Axenfeld-Rieger Syndrome

Sara

Modena, Italy

SaraRead More

Axenfeld-Rieger Syndrome in 8 year old girl

Cassandra

Vermont, USA

CassandraRead More

Ciara is blind and works as a teacher

Ciara

Georgia, USA

CiaraRead More

See More

News

Stay up to date on our latest articles, press releases, and what we are doing serve and bring change to our community.

Dr Bailey Hannon has joined the Axenfeld-Rieger Foundation’s Scientific Advisory Board

A senior scientific researcher for one of the world’s most dynamic biotechnology companies, Genentech, has joined the Axenfeld-Rieger Foundation’s Scientific Advisory Board.  Dr Bailey Hannon is a member of the Translational Immunology Department where her work…

Dr Bailey Hannon has joined the Axenfeld-Rieger Foundation’s Scientific Advisory BoardRead More

Dr Alex Levin joins the Axenfeld-Rieger Foundation’s Scientific Advisory Board

A leading pediatric ophthalmologist, with extensive experience in ocular genetics and bioethics, has joined the Axenfeld-Rieger Foundation’s Scientific Advisory Board.  Dr Alex Levin has more than 35 years experience in pediatric ophthalmology, pediatrics, and ocular genetics.…

Dr Alex Levin joins the Axenfeld-Rieger Foundation’s Scientific Advisory BoardRead More

Dr Markus Kuehn joins the Axenfeld-Rieger Foundation’s Scientific Advisory Board

An Investigator of Glaucoma Cell Biology and a Professor of Ophthalmology at the University of Iowa has joined the Axenfeld-Rieger Foundation’s Scientific Advisory Board. Dr Markus Kuehn’s research focuses on understanding the cellular events that lead…

Dr Markus Kuehn joins the Axenfeld-Rieger Foundation’s Scientific Advisory BoardRead More

Join our Board of Directors!

We are looking for active and hands-on board members to help achieve our ambitious plans. As a volunteer organization we are dedicated to advancing scientific research into Axenfeld-Rieger Syndrome and improving the lives of people in…

Join our Board of Directors!Read More

Biomedical Engineer joins the Scientific Advisory Board.

Dr. C. Ross Ethier joins the Axenfeld-Rieger Foundation’s Scientific Advisory Board

A Biomedical Engineer specialising in glaucoma research has joined the Axenfeld-Rieger Foundation’s Scientific Advisory Board.  Dr. Ross Ethier is a multidisciplinary researcher and a Professor at Georgia Tech. His research focuses on understanding the biomechanics of…

Dr. C. Ross Ethier joins the Axenfeld-Rieger Foundation’s Scientific Advisory BoardRead More

DNA structure

Geneticists studying ocular and craniofacial development join Axenfeld-Rieger Foundation’s Scientific Advisory Board

Two of the world’s leading researchers into developmental ocular conditions have joined the Axenfeld-Rieger Foundation’s scientific advisory board. Elena Semina, PhD and Linda Reis, MS, CGC from the Medical College of Wisconsin have been actively involved…

Geneticists studying ocular and craniofacial development join Axenfeld-Rieger Foundation’s Scientific Advisory BoardRead More

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